Showing posts with label Chemotherapy. Show all posts
Showing posts with label Chemotherapy. Show all posts

Monday, July 11, 2011

How Four Months Can Very Soon Feel Like Four Years

Strange just how much can happen in one-third of a year.

Four months ago to the day, I was wheeled into an operating theater in Denmark's top hospital. In the intense few hours that followed, a gifted surgeon and a deeply professional team obtained a dream result: they successfully resected a malignant tumor from my pancreas and then took an incredible number of biopsies from surrounding tissue, just to be on the safe side. Each and every one subsequently came up negative, so the cancer hadn't spread.

I wrote briefly about the experience of being both diagnosed with the deadliest of all the cancers and spared/saved from it all within the space of three weeks. Many people have asked me: how have things been going since?

The answer is not simple, for one reason: chemotherapy.

As part of its world-beating approach to combating deadly cancers, Denmark's University Hospital recommends and requires that a "cured" patient nonetheless undergo follow-up chemotherapy...for six months.

Three of those months - nearly - have now elapsed, though I have to admit that no month when you are undergoing chemo "elapses" (if only). Having one's post-operative existence divided up into 21-day cycles, each one marked by rising levels of heavy metals in one's body, well it's no walk in the park, alas. And the side-effects of the chemicals used [PDF] - I can testify - are in some ways as insidious as the original cancer, in that they are gradual, but comprehensive.

In my case, and remember each and every cancer patient reacts difficulty, I managed the first three cycles, 63 days, with only a few setbacks. But the fourth cycle somehow knocked me sideways, which is why you have heard so very little from @jg21 on Twitter, and seen so very little of me on Facebook since June's wonderful 8th Cloud Expo in NYC.

The past three weeks, in fact, have brought me face-to-face with some very harsh realities. The final three months of chemo are going to be a challenge...and, in order to successfully meet that challenge, I am going to have to dramatically rearrange my professional priorities so as to maximize healing time, minimize stress, and optimize my working day.

For all indirectly affected by this epiphany, which would probably have been better had it come a tad sooner, I apologize. But never has "less is more" been truer. For me to be back to fighting fitness - and weight! - for the Fall, I need finally to accept that convalescence (from Latin convalescere, whose root is in valescere, to be strong...which I currently am not) isn't something that you just "fit in" around all your other commitments; it is something you have to prioritize ahead of those commitments.

My aim in July, August and September then is to write, but to do so largely offline. You will still see the results online, but only as and when they are uploaded. Look out soon, for example, for my updated and hugely expanded Top 350 Players in the Cloud Computing Ecosystem, for an entirely new feature, Around the Cloud in Eighty URLs, and assorted other features aimed at providing convenient one-stop destinations for Cloud insights and information.

I need a 3-month respite from Twitter. By the final three months of 2011 I shall be completely done with chemotherapy, will no longer be tasting heavy metal at the back of my throat 24x7, will no longer be falling asleep for 12 hours at a time, and will no longer see every muscle group in my entire body subject to the ravages that only chemo can exact...a fierceness that has no respect for former waist or neck sizes.

I repeat to myself twenty times a day that it is better than the alternative. And it is. But it would be wrong of me to pretend that this hasn't been the longest four months of my life, and that I am steeling myself for a rough final three months still ahead.

When all is said and done, it seems a ridiculously small price to pay for surviving pancreatic cancer. I am very very grateful.

It brings to mind the words of the writer Melodie Beattie, who memorably noted:
Gratitude unlocks the fullness of life. It turns what we have into enough, and more. It turns denial into acceptance, chaos into order, confusion into clarity.... It turns problems into gifts, failures into success, [and] the unexpected into perfect timing."

Saturday, April 16, 2011

8th International Cloud Expo: It is going to be simply Cloudtastic!

Okay, things have been happening just so fast and furiously just recently that many people have asked me to just take a deep breath and help them play catch-up. Here goes...

Basically all you need to know is that I am back from having "lost" two months of my life.

In those two months I somehow managed to 1. discover that for some reason or other I was not myself, 2. ascribe the blame (wrongly) to a recurrence of the shingles that I had contracted 27 years ago, 3. achieve a diagnosis (correctly) of a massively distended gall-bladder, and 4. pursue that line of inquiry to its logical end...which was alas that the entrance to not just my gall-bladder but three other internal organs - a sort of 4-way traffic junction if you will - was being obstructed by a two-centimeter tumor lodged at the head of my pancreas.

Stranger still, in the same two months I also managed to 5. have the tumor resected (sliced out) successfully, 6. have my entire digestive system rearranged in a so-called "Whipple procedure" (feel free to Wikipedia it, but make sure you are sitting down first), 7. recover from the radical surgery and 8. begin the first cycle of a nine-cycle, six-month course of "preventative" chemotherapy aimed at minimizing the possibility of any return of pancreatic or any other kind of cancer to anywhere in my body.|

It wasn't quite the 2011 that I had scheduled back in November and December of 2010.

To claim that my work didn't get majorly disrupted would be ludicrous, delusional. On the other hand, Cloud Expo New York, the 8th International Cloud Computing Conference & Expo - thanks to the amazing team effort that has characterized this event since its inception seven successful shows ago - is trending to be the biggest Cloud event ever. We have over one hundred exhibitors from every level of the cloud computing ecosystem and a non-stop, 4-day technical program, with expert speakers from every top Cloud player, including Abiquo, Amazon, AppZero, AT&T, CA Technologies, Cloud.com, Dell, Dell Boomi, Eucalyptus Systems, Fusion-io, Google, HP, IBM, Layered Technologies, Layer7, LogLogic, McAfee, Microsoft, OpSource, Oracle, OutSystems, OxygenCloud, PayPal, PerspecSys, Quest Software, Rackspace, RightScale, Spoon, Stoneware, Terremark, Virtela, VMware, Xiotech and Zetta.

Altogether, not too shabby. But then, this is the tech conference world's top team. Cloud Expo New York may be only the eighth successive Cloud Expo, but it is actually my fiftieth consecutive event as Conference Chair...so we are building on a fairly decent track record of eleven busy years of producing conferences for the Internet technology community.

But before you worry that maybe, among my newfound plans, there might lurk some wheeze to write the book Pancreatic Cancer is Good for You, let me assure you that on the contrary never in all my life have I felt so humble and privileged and plain dumb lucky.

I am fully aware that the odds I have beaten - or, rather that I have been helped to beat by a brilliant piece of highly invasive surgery carried out both fast and well - were very very long. Lots of different stars had to line up for me to be declared, essentially, cancer-free just seven weeks after being diagnosed with what turned out to be a malignant tumor straight out of Pancreatic Cancer 101 - as in, not only able to kill, but usually successful in killing, if not within a year or two, then almost always within five.

"The silent killer" is what they call pancreatic cancer. Its survival rate is, in the words of one of the earlier websites that (alas!) I chanced upon very early while trying to get a sense of what I was up against, "dismal." And even the less dramatic and more scholarly sites that I found a little later were still very forthright: only 20% of pancreatic cancers are even operable...and of the 20% that are operated on, only a certain percentage seem to end up cured. Most still seem to end up dead. (The mystery of that one still defies me, but perhaps other patients are typically older, or less fit, than I was when diagnosed, so that their tumors, although removed, left traces of cancer behind...)

But then again, what actual use are statistics? What matters, when you are up against a major medical challenge, is you...not some sample of other patients. What matters is to feel strong, to feel loved, and to feel optimistic - and I was blessed with all three. So actually it isn't really surprising at all that I beat the odds. With all that strength (partly from fitness, mostly from stubbornness!), all that love (from my family, my friends, and colleagues who have simply blown me away with their compassion and concern and positive karma, and not least all that optimism (supplied to me at birth in almost infinite quantities)...how could I ever have failed?

I promise you that this is last time that any of you will have to endure hearing about one man's brush with "PanCan" as this scary killer is called. From here on all have to say about it will be said through actions rather than words, specifically my participation in the 2011 San Francisco Marathon on July 31, when I hope you will consider helping raise $10,000 for the Pancreatic Cancer Action Network (>www.PanCan.org) which is trying to double the survival rate for pancreatic cancer by 2020. The money will go directly to much needed R&D, much neded because for whatever reason very little real progress has been made in fighting this particular cancer in the recent past.

Either way, whether you decide to allocate a few dollars to fighting PanCan or not, know that I will be there on the podium as ever at Cloud Expo New York, and that you will truly not be able to discern any difference: I will still be my same old self...for better or for worse! So look out for me as conference emcee, Power Panel moderator, SYS-CON.tv host, and as a general all-purpose go-to guy if you have a bone to pick with Cloud Expo or (even better) a constructive suggestion as to how we can go on making the event more and more valuable to those who participate, whether as delegates, speakers, exhibitors, sponsors, or attending press & analysts. I should be pretty easy to find! :)

So.....see you in New York City at the Jacob Javits, 6 - 9 June. It is going to be simply Cloudtastic!

Friday, April 8, 2011

"Small Bites All Day Long – Whatever Tastes Good."

Occasionally in the life of every commentator, even those of us who look at the future of the future day and night, you experience what amounts - yes, there is no other word for it - to an epiphany.

The earliest techno-epiphany I experienced was not, in reverse chronological order, the realization that mobile was the new normal, nor that computing was going unswervingly social, nor even that the Web was going to forever alter the economics of insight capture and distribution. Nope. It dates much further back, to the advent of the Internet itself.

Of course, as a Brit, when I talk of "the advent of the Internet" I am doing what Americans do when saying that the Second World War started in 1941...I am speaking about it from a wholly insular perspective. But this was back in the day, and that was how the world was. We are talking about the world pre-"globalization" - a world where each nation, roughly speaking, paddled its own canoe.

My employer in those days was the British Broadcasting Corporation, and it is indeed through the BBC that my epiphany came. At the time I worked for both BBC-tv and BBC Radio in separate but simultaneous capacities, so it was natural that I also ate my own dog food and both viewed and listened to the BBC more or less 24x7.

That is why it is easy for me to remember the day in the early 1990s that, on BBC Radio's most popular and influential morning show, the then Chair of the British Computer Society was called up by the presenter of the show and asked, bluntly: "So how would you go about explaining this 'Internet' thing."

The BCS Chair didn't miss a beat. Of course he'd probably been asked the question a dozen times before in the past little while, but never by a presenter from mainstream media. He could have alluded to the Internet's origins, attempted to bedazzle the huge morning audience with his erudition and knowledge. Instead he did what so few people, in such circumstances anyway, do. He nailed it.

"The best way to comprehend the unique quality of the Internet," he answered, "is first to understand that it is made up many small parts, loosely connected."

Many. Small. Parts. Loosely. Connected.

That was it. That was, unmistakeably, the very essence and core of the Internet. But it was the first time that I had ever heard it boiled down so magnificently...into just five words.

That was all a looooooooooooooooooooooooooooooooong time ago, and since then we have seen the creation of the Web, the dot-com crash, the fallow years, and now the New Boom/Bubble. But the five words still resonate with me. And what is more, they were the first thing I thought of when someone recently sent me seven rather similar words, and caused an entirely new epiphany...this time in a more personal context.

Let us not get too bogged down worrying why anyone would be giving me nutritional advice. Suffice it to say that I have been obliged recently to review my eating habits, mainly because of having lost 10% of my body weight to a radical surgical procedure aimed at curing me of pancreatic cancer. And, in this context, a fellow cancer survivor just wrote me - full knowing that I was struggling to maintain the 90% that was left, let along get my weight back to status quo ante, that's to say, before my Whipple surgery - a brief note of advice.

Here was her wise counsel: "Small bites all day long - whatever tastes good."

So what was the epiphany? Well it was this: the advice was proffered in the context of nutrition, but those seven words leapt out at me in another context completely - forgive me, dear reader, for at this point you will realize that one of the things about cancer survivors, particularly those who have been operated on successfully and are now undergoing six months' of preventative chemotherapy, is that they constantly wax philosophiocal.

I mean, surely those seven words - sent by a dear, dear friend - are a recipe not just for recovery after radical surgery...surely they're a recipe for life itself? For in the banquet of life what better advice could one possibly give a favorite nephew or a beloved son or daughter than this? "Take small bites all day long - whatever tastes good." :-)